Sydney Children's Hospital - 2ST

Milton youngster faces her second battle with leukaemia


Little Kyesha-Lee Minuti has already proven her fighting abilities.

And the four-year-old from Milton is going to need all of them as she faces a second battle with leukaemia.

Mum Terri Lang said Kyesha-Lee was diagnosed with leukaemia at the age of just 22 months, starting a two-year process of chemotherapy and treatment before she was finally given a clean bill of health.

But a blood test just three months later showed the leukaemia had returned, prompting a return to the Sydney Children's Hospital for more treatment.

It will culminate in coming weeks transplant of bone marrow coming from her five-year-old brother Dylan.

"On the 1st of December she gets admitted for the chemo and the transplant, and then she's going to be in isolation of hospital for two or three months," Ms Lang said.

"She's had three months of chemo now, and then she'll have another really hard week from the 1st to the 8th of chemo to wipe her system totally for the bone marrow to go on the 8th, which her big brother is the donor which is really good.

"It's sort of mixed emotions - it's really good that he's going to be a donor, but there's going to be two of my babies in hospital at the same time having operations. It's going to be a hard day."

Ms Lang will be joining Kyesha-Lee in isolation following the bone marrow transplant, taking all necessary precautions "to keep her safe".

"We've got to get through the next few months of her having no immune system," she said.

"It's going to be a hard road but I've got to do what I've got to do as a mum and get her better."


Ms Lang said watching the youngest of her six children battling through not only the illness but also the debilitating impacts of treatment had been tough.

But she is no stranger to difficult times, having already gone through more emotional pain than many people could imagine.

"I've been through hell and back already," she said.

It peaked when Ms Lang lost her second child, son Kyle, to pneumococcal meningitis when he was just eight weeks old back in 2004.

It took just days for Kyle to go from being a healthy, normal baby to needing on life support machines.

"He was healthy and we thought he had just stomach issues, then all of a sudden it was pneumococcal meningitis," she said.

"They did the scans and it'd attacked his brain stem so they practically told me he was going to be a vegetable or we needed to turn the machines off, so I had to make that horrible choice, but I had to do what was best for him not best for me.

"As much as I wanted to keep him here and be a mother, it just wasn't the right situation - even the doctor said it's cruel."

Ms Lang said making the decision to turn off the life support was "so hard".

"It was one of the hardest things I've ever had to do in my life," she said.

However she has a community rallying around her to help ensure a better outcome with this health battle as Kyesha-Lee fights to overcome leukaemia.

Friends and family members are organising a fundraising raffle to help with the costs of Ms Lang staying in Sydney with Kyesha-Lee while the rest of her family is in the Shoalhaven, and there is also a Go Fund Me page set up called Kyesha-Lee's Journey with Leukaemia.

Images: Terri Lang